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SEE THEIR STORIES
  • Tanner, diagnosed with HPP at 4 days old, with a stuffed animal

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    RENE, MOM OF TANNER

    LIVING WITH HPP

    HEAR HIS STORY ABOUT HPP

    TANNER
    LIVING WITH HPP

  • Roberta, diagnosed with gMG at 16 years old

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    ROBERTA

    LIVING WITH gMG

    HEAR HER STORY ABOUT gMG

    ROBERTA
    LIVING WITH GMG

  • The Trendys, diagnosed at 17, 14, 11, and 9 with LAL-D

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    REBECCA, MOM OF TRENDY BROTHERS

    LIVING WITH LAL-D

    HEAR THEIR STORY ABOUT LAL-D

    THE TRENDY FAMILY
    LIVING WITH LAL-D

  • Chelsey, living with NMOSD, painting

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    CHELSEY

    LIVING WITH NMOSD

    HEAR HER STORY ABOUT NMOSD

    CHELSEY
    LIVING WITH NMOSD

  • Donnan, diagnosed with aHUS at 39 years old, and his son

    I can chase my kids and play again. I think knowing what I have brings a peace to my life.”

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    LIVING WITH aHUS

    HEAR HIS STORY ABOUT aHUS

    DONNAN
    LIVING WITH aHUS

Every day, those who live with rare diseases and devastating conditions inspire us to push the boundaries of medicine, technology, and healthcare services. Our goal is to transform their reality for the better.

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I feel like tomorrow I can do something, whereas before, I didn’t feel like tomorrow was possible.”
JESSE 能上油管的网络加速器

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